{"id":303,"date":"2010-11-11T18:21:02","date_gmt":"2010-11-11T18:21:02","guid":{"rendered":"http:\/\/occamstypewriter.org\/trading-knowledge\/2010\/11\/11\/a_very_special_feature\/"},"modified":"2011-03-01T20:40:46","modified_gmt":"2011-03-01T20:40:46","slug":"a_very_special_feature","status":"publish","type":"post","link":"https:\/\/occamstypewriter.org\/trading-knowledge\/2010\/11\/11\/a_very_special_feature\/","title":{"rendered":"A very special feature"},"content":{"rendered":"<p>This week&#8217;s <em>Nature<\/em> has a <a href=\"http:\/\/www.nature.com\/news\/specials\/schizophrenia\/index.html\">special feature on schizophrenia<\/a>:<\/p>\n<blockquote><p><i>A special<br \/>\ncollection of articles focuses on the challenges of schizophrenia, from spotting early symptoms during adolescence to changing the stigma associated with the disease.<\/i><\/p><\/blockquote>\n<p>It tells us that over 0.5% of the world&#8217;s population experience schizophrenia at some time in their lives, and that its impact is more debilitating than most psychiatric illnesses. &nbsp;I haven&#8217;t read the special feature yet but hope to work through at least some of it.&nbsp;<\/p>\n<div>\n<\/div>\n<div>Last week I attended the funeral of someone I had known through work: Janey Antoniou. She was nearly the same age as me, just a few weeks older. &nbsp;She had studied molecular biology at the University of Sussex and also gained a master&#8217;s degree in Genetics. She worked in Andy Mellor&#8217;s group at the <span class=\"caps\"><span class=\"caps\"><span class=\"caps\">MRC<\/span><\/span><\/span> Clinical Research Centre at Northwick Park, and followed him to <span class=\"caps\"><span class=\"caps\"><span class=\"caps\">NIMR <\/span><\/span><\/span>when he moved here in the 1980s. When he left she joined Dimitris Kioussis&#8217; group for a few years, leaving <span class=\"caps\"><span class=\"caps\"><span class=\"caps\">NIMR <\/span><\/span><\/span>in the late 1990s.&nbsp;<\/div>\n<div>\n<\/div>\n<div>Her colleagues remember her at the weekly lab meetings. She would listen to whatever was being presented or discussed and then if she didn&#8217;t agree would come right out with &#8220;That&#8217;s all bollocks!&#8221; &nbsp;I can just hear her saying that. &nbsp;She was not afraid to let you know what she thought, but she was not a firebrand. &nbsp;She really engaged with people and had a great deal of compassion.&nbsp;<\/div>\n<div>\n<\/div>\n<div>She was a keen musician and,&nbsp;like myself, a&nbsp;singer. &nbsp;I came to know her as we both sang in &nbsp;the Institute choir &#8211; a small group which put on a few informal concerts each year. &nbsp;I remember her as a quirky individual, a bit unpredictable perhaps but with a big, generous laugh. After she left the Institute I didn&#8217;t see her again for several years. It some years later that I realised I had only known a small part of Janey.<\/div>\n<div>\n<\/div>\n<div>One day, listening to the radio in a half-hearted way, I heard a program about mental health. A woman was describing an event in her life. She was standing on Westminster Bridge and then jumped off into the River Thames below. She was washed up a little way downstream and survived. The story was shocking not least because it was narrated in a very matter-of-fact way. I thought the voice seemed familiar and suddenly I realised it was Janey&#8217;s. I had an uncomfortable moment as I tried to put together my previous image of Janey with this new picture of who she was, and the torments she described.&nbsp;<\/div>\n<div>\n<\/div>\n<div>Janey suffered from depression and schizophrenia for many years; she was diagnosed in her 20s but had episodes of illness several years before that. &nbsp;She has been very open about her illness, giving interviews like this one in the <a href=\"http:\/\/www.guardian.co.uk\/lifeandstyle\/2007\/sep\/08\/healthandwellbeing.features1\"><b>Guardian<\/b><\/a> in 2007 or this in the <a href=\"http:\/\/blogs.mirror.co.uk\/dear-miriam\/2010\/05\/keep-an-open-mind-about-schizo.html\"><b>Mirror<\/b><\/a> earlier this year, and this <a href=\"http:\/\/www.rcpsych.ac.uk\/press\/podcasts\/janeyantoniou.aspx\"><b>podcast of a talk with Raj Persaud<\/b><\/a>, also from 2007. &nbsp;She was also an <a href=\"http:\/\/apt.rcpsych.org\/cgi\/content\/full\/8\/5\/324\"><b>activis<\/b>t<\/a> on mental health issues, working in various organisations and in later years in demand as a conference speaker. I understand that her direct and honest approach was much appreciated. &nbsp;In effect, her ability to say &#8220;that&#8217;s all bollocks&#8221; with a smile on her face proved valuable in many situations.&nbsp;<\/div>\n<div>\n<\/div>\n<div>Janey developed a unique way of training police and ambulance officers. The Guardian article describes it:<\/div>\n<div>\n<\/div>\n<blockquote class=\"webkit-indent-blockquote\">\n<div>Janey makes them listen to a<br \/>\nsoundtrack of babbling, jeering voices while she asks questions such as, &#8220;What&#8217;s your postcode?&#8221; Most muddle their replies, and even experienced professionals sometimes tear off their earphones, visibly disturbed. Then she&#8217;ll ask, &#8220;How long do you think you could hear all that and live&nbsp;a normal life?&#8221; The point of the exercise is to help officers handle schizophrenics intelligently; and the experience Janey replicates is her own.<\/div>\n<\/blockquote>\n<div>Those undergoing the training say it really helped them to understand and to deal with greater sensitivity with people with this illness. It wasn&#8217;t easy for Janey though. &nbsp;Talking about her illness and drawing on her own experiences in this way was very draining as she had to relive the voices she heard. &nbsp;In addition to this&nbsp;Janey worked part-time for Rethink, a charity devoted to&nbsp;people affected by severe mental illness, as a member of their research staff. Her <a href=\"http:\/\/www.rethink.org\/how_we_can_help\/research\/research_staff\/janey_antoniou.html\"><b>profile page<\/b><\/a> there lists some of her publications.She was active in the Mental Health Research Network stigma group, drawing attention to the problems faced by sufferers from mental illness.<\/div>\n<p>The funeral was an emotional occasion &#8211; she was loved by many for her passion and compassion and admired by many for her truthtelling, sincerity and bravery. The most moving moment was when a friend of hers read a poem that Janey wrote. &nbsp;It won the Martha Robinson Poetry Competition in 2006 and was entitled <i><a href=\"http:\/\/voicesforum.org.uk\/ophelia.htm\"><b>Ophelia in London<\/b><\/a><\/i>. It is beautiful but so very sad. Janey lived a life that was inspiring and I feel privileged to have known her, however imperfectly.&nbsp;<\/p>\n","protected":false},"excerpt":{"rendered":"<p>This week&#8217;s Nature has a special feature on schizophrenia: A special collection of articles focuses on the challenges of schizophrenia, from spotting early symptoms during adolescence to changing the stigma associated with the disease. It tells us that over 0.5% &hellip; <a href=\"https:\/\/occamstypewriter.org\/trading-knowledge\/2010\/11\/11\/a_very_special_feature\/\">Continue reading <span class=\"meta-nav\">&rarr;<\/span><\/a><\/p>\n","protected":false},"author":17,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[32],"tags":[],"class_list":["post-303","post","type-post","status-publish","format-standard","hentry","category-friends"],"_links":{"self":[{"href":"https:\/\/occamstypewriter.org\/trading-knowledge\/wp-json\/wp\/v2\/posts\/303","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/occamstypewriter.org\/trading-knowledge\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/occamstypewriter.org\/trading-knowledge\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/occamstypewriter.org\/trading-knowledge\/wp-json\/wp\/v2\/users\/17"}],"replies":[{"embeddable":true,"href":"https:\/\/occamstypewriter.org\/trading-knowledge\/wp-json\/wp\/v2\/comments?post=303"}],"version-history":[{"count":0,"href":"https:\/\/occamstypewriter.org\/trading-knowledge\/wp-json\/wp\/v2\/posts\/303\/revisions"}],"wp:attachment":[{"href":"https:\/\/occamstypewriter.org\/trading-knowledge\/wp-json\/wp\/v2\/media?parent=303"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/occamstypewriter.org\/trading-knowledge\/wp-json\/wp\/v2\/categories?post=303"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/occamstypewriter.org\/trading-knowledge\/wp-json\/wp\/v2\/tags?post=303"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}